Educational children's book about tuberculosis

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1. Summary of your research (300 words max)

As a medical anthropologist, I have spent the last few years conducting qualitative research on tuberculosis care and prevention. As part of my postdoctoral research at the Woolcock Institute of Medical Research, I identified a big need for an educational resource to help people in low- and middle-income countries, where this disease is prevalent, to learn about tuberculosis disease. I decided to write a children's book about the symptoms, diagnosis and treatment of tuberculosis. Sydney-based Indonesian artist Amelia Darmawan drew beautiful images for this book, which is now available online for free through Enculture Press. At the beginning of 2015, I had the opportunity to pilot the Vietnamese version of this book with a hundred school children in Ca Mau, the southernmost province of Vietnam. On a quiz with ten comprehension questions about the content of the book, no students got more than 2 questions wrong. In fact, fifty percent of students got every answer correct. This was an excellent indication that this book is an effective tool to learn about tuberculosis. Motivated by this success, I crowdfunded the first stage of development and raised just over $6,000 to print copies of the book to be distributed in Vietnam next year. Together with colleagues from the Global Young Academy and around the world, I have worked to translate the book into twenty languages including Arabic, Chinese, English, French, German, Greek, Indonesian, Italian, Javanese, Khmer, Malaysian, Mauritian Creole, Polish, Portuguese, Romanian, Russian, Swahili, Togalog, Turkish, and Vietnamese, with more translations to come. My vision is to translate and distribute this educational book in countries with a high burden of tuberculosis. The ultimate aim is to destigmatise tuberculosis disease by teaching children and their families about the symptoms, diagnosis, and treatment of this curable infection.

2. Any additional details you would like the public to know

Tuberculosis outranks HIV/AIDS as the world's biggest infectious killer. The WHO estimates that in 2014, 9.6 million people fell ill with tuberculosis and 1.5 million died from the disease. One million of those tuberculosis cases were children, of whom an estimated 140,000 died.

Tuberculosis should not claiming lives at all. Antibiotics to cure the disease have been available for over fifty years. Technology to diagnose the disease has been consistently improving. Clearly the problem is not simply medical, but also social and cultural. My research addresses the problem of tuberculosis at the cultural level. By trying to develop social interventions, such as a public health education tool like my children's book, I hope to improve knowledge, attitudes and practices towards tuberculosis among key populations. The goal is to reduce the global burden of tuberculosis.

My research on tuberculosis has been published in various peer-reviewed journals including the Journal of Bioethical Inquiry, Australasian Psychiatry, International Journal of Tuberculosis and Lung Disease, Journal of Biosocial Science, and soon in the Australian and New Zealand Journal of Public Health. I have also written popular science pieces about tuberculosis and drug resistance for Croakey and Culture Matters, and spoken about tuberculosis on ABC radio and 2SER. Enculture Press has published my children's book about tuberculosis for free in:
  • Arabic (ISBN: 978-1-925082-27-2),
  • Chinese (ISBN: 978-1-925082-35-7),
  • English (ISBN: 978-1-925082-16-6),
  • French (ISBN: 978-1-925082-30-2),
  • German (ISBN: 978-1-925082-33-3),
  • Greek (ISBN: 978-1-925082-26-5),
  • Indonesian (ISBN: 978-1-925082-24-1),
  • Italian (ISBN: 978-1-925082-34-0),
  • Javanese (ISBN: 978-1-925082-22-7),
  • Khmer (IBSN: 978-1-925082-25-8),
  • Malaysian (ISBN: 978-1-925082-21-0),
  • Mauritian Creole (ISBN: 978-1-925082-28-9),
  • Polish (coming soon),
  • Portuguese (ISBN: 978-1-925082-19-7),
  • Romanian (ISBN: 978-1-925082-31-9),
  • Russian (ISBN: 978-1-925082-20-3),
  • Swahili (ISBN: 978-1-925082-32-6),
  • Togalog (ISBN: 978-1-925082-18-0),
  • Turkish (IBSN: 978-1-925082-23-4),
  • Vietnamese (ISBN: 978-1-925082-17-3).

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Comments

12
Anindita Bhadra
over 2 years ago

This is a great book. I have seen an animation made on this book, and was very impressed indeed.

Shyuan Ngo
over 2 years ago

You have truly developed an innovative and interactive medium that appears to be very effective at educating children and families about TB. Congratulations on your achievements thus far and all the best for the future!

Puneet Singh
over 2 years ago

An powerful and simple tool for children and parents to learn about TB in order to prevent and treat this deadly disease.

Helen Bynum
over 2 years ago

TB in children is such an important problem and this book points a way forward

Mostofa Alam
over 2 years ago

Great book. I wish it will be translated in Bengali language as well.

Jordan Cieselski
over 2 years ago

Your book I have read in Russian. It is very impressive. My children very very much enjoyed the rabbits.

Huygens van Mansfeld
over 2 years ago

Wonderful! Do you need it translated into Dutch?

Damla Uygur
over 2 years ago

Congratulations for the work and I wish you good luck!

Emma Rule
over 2 years ago

Fantastic book. I love the way the message translates through Amelia Darmawan's illustrations.

Simon Smithson
over 2 years ago

Good luck amigo!

Stephen Nguyen
over 2 years ago

Congratulations and good luck Paul!

munro 45m
10 months ago

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